Sorry I didn’t write anything yesterday, it was the worst day yet. I felt so bad I couldn’t stand up. Literally I felt like I was going to die. Steve left work to take me back to the doctor. By the time I got to the doctor’s office I was having violent twitches. I don’t know what I pay the doctors for, because it was Steve who figured out in the doctor’s office that I was badly dehydrated. Fluids perked me right up and the twitching stopped. They drew more blood, I saw a pulmonologist and guess what? Still no answers.
I’m back to feeling the way I’ve been feeling since Sunday, which is infinitely better than how I felt yesterday. Not suprisingly, I’ve lost a few pounds. Not a diet I would ever recommend. The internal medicine doctor, trying to cover all bases, prescribed a broad spectrum antibiotic yesterday. I figure the potential benefits outweigh my philosophy on not taking drugs when they don’t know what’s wrong. Maybe the new round of blood work will tell them something new. Although, I doubt it. I’m getting bounced around from specialist to specialist. I think I’m going to end up in the lap of the rheumatologist. I’ve thought from the beginning that this might be the sympathetic nerve condition I have in my knee that might have moved to my chest/heart area. It feels like that. My skin feels hot like I’ve been burned. It feels like how my knee started. The other doctors asked the rheumatologist if RSD can move to your chest and he said no. Except last night I went online and found information indicating that it CAN move to the chest wall and cause an angina-like syndrome. I’m going to be very upset if the solution is to just increase my knee meds after all this. I’ve been asking since day one if that could be the problem because it’s just so unlikely that someone with my lifestyle/weight/diet would be having cardiac or pulmonary issues.
Thank God for the internet, eh? There was a time when one would just have to flounder. Steve wants me to fax the paper I found online last night written by an MD on RSD to the doctors and let them explain to me why they are saying it can not move to the chest when it can. All the doctors clearly said that RSD is a little understood disease. Duh. I’m seeing so little understanding. lol. I’m assuming if the blood work they did yesterday all comes back ok, they’re going to finally relent and say “Yeah, it could be RSD.” Doctors absolutely HATE IT when you already know what’s wrong. They just HATE that. Sigh.
Thank you AGAIN for all your well wishes and comments, I’ve read them all, I’m just having trouble finding the energy to sit here long enough to answer them. I hope to be up to my usual smart ass retorts and rants soon. And just so you know, I have no material to make fun of Steve throughout this whole thing because he’s been very sweet and loving and attentive. And no, you can’t have him, he’s mine. Weird coffee notes and all…. ![]()
























